Friday, May 13, 2011

One step forward and two steps back

Yesterday(5-12-2011) I went to see Kaleb at Riley Hosp. and got a not-so-good surprise, apparently overnight he had started having trouble breathing and they did an x-ray of his chest and found a pocket in his lung that was collapsed and to help him open that pocket they put him back on the CPAP which forces air into the lungs even when he is breathing on his own. They said in the morning they would do another x-ray and hopefully everything would look better and they would be able to take him off the CPAP.
They also said his hemoglobin was a little low but they didn't want to give him blood yet, they wanted him to have a chance to try and make some on his own.
Other than those 2 things, lol, he was doing fine!
His weight is up to 4 lbs, he is getting about a 1/4 ounce of formula through his feeding tube every hour around the clock.
He is still maintaining his body temperature at about 97.7 F
He is still learning to suck on the pacifier.
He is still moving around, rolling side to side, keeping the nurses on their toes!! For example while I was there he somehow pulled his feeding tube out of his throat, yeah clear out! ouch?!?
See this tube in my mouth, I am going to pull it out!

See, ha ha it's out!!!

Hey, mom! Did you see that? I pulled out my feeding tube, don't tell the nurses okay?!

So on to.... Today...... Happy Friday the 13th
Today another not-so-good day, Kaleb's x-ray this morning showed fluid on his left side of his lungs which is causing him to breath hard and his hemoglobin count is lower.
So...Today they have to put a tube in to drain the fluid, which is almost another surgery to do that, he has to be sedated , on medicine for pain, have a hole cut in his side for the tube, while they watch an ultrasound to make sure they don't poke anything they aren't supposed to! Big, scary stuff for such a little guy! Plus he has to have a blood transfusion because his hemoglobin count is so low.
He is doing well after his procedure, he is breathing much better now that some fluid is being drained off.
He has had 1/2 his blood transfusion and it went well, he will have the other 1/2 at 10:00pm tonight.
He still has the CPAP to give him some extra oxygen.
So for now he is resting after his way too exciting Friday the 13th!
Thank you all for your continued prayers for Kaleb and our family.
For his Glory,
Ginger

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