Kaleb is coming home soon!

HI everyone, thank you all for your continued prayers. It looks as if Kaleb will be coming home in the next 2 weeks.
We went to Riley yesterday for our second "care conference",(this is where the DR.'s and nurses give you updates on how your kid is doing) and they said about 2 more weeks and this is why:
1. We (the Dr.'s and us) have decided that a G-tube would be best for Kaleb. A G-tube is a tube that goes directly into the stomach for feeding, no more tube in the nose/mouth. The Dr. said that since Kaleb has been on the NG tube (the one in his nose)since birth, he could develop an aversion to things in his mouth and that would be bad, he may not want to eat , ever! So we are getting it out! Kaleb will continue with bottle feeds, this will just help him with whatever he cannot do through the bottle. He is doing well with the bottle but he still gets very tired, this is due to his AV Canal defect (hole in his heart), after his surgery to repair the AV Canal defect he should be able to get rid of the G-tube.
This G- tube installation is an operation, so it will require some recovery time afterward.
2. They will be doing his circumcision while he is sedated for the above surgery.
3. They need to do a sleep study on him. This is where they will decide how much oxygen Kaleb needs.
4. He has to do a car seat test. This is where they monitor him in his car seat for the length of your car trip home, our case 1 1/2 hours.
5.The first night away from the NICU we have to stay in the "Towers". This is a place families can stay inside Riley with their child for the first night in case anything goes wrong or forgotten questions arise! And the Dr.'s and nurses are a few steps away!
So ...all the above takes time, schedule of surgery, hopefully they can get him in on Monday or Tuesday, then recovery a couple more days, then sleep study etc... so you can see we are getting there!!
Anyway I have been really praying about this G-tube operation, it is an elective surgery and I keep telling myself it is to help him eat and stuff but I feel bad putting him through another surgery. If anyone has experience with this, I would love feedback from you.
Also we have already seen the ignorance of people who lump everyone with a disability together without seeing what their individual abilities are. YES, here at Riley Hosp. The Dr."on duty"( they are on for 3 weeks at a time) said in our last "care conference" that she didn't think Kaleb would be able to take a bottle because children with Down Syndrome have low muscle tone and have week esophagus', surprise he can take a bottle and he does it well, she said in this conference how surprised she was, she couldn't believe he could do it! She said he surprises her with alot that he can do! Doesn't surprise me, he has been a fighter from day one! I knew he could do it! Why? Cause I am the Mom that's why!! Sorry had to vent a little!!!
Hope I didn't forget anything , sorry the note is so long.
Thank you again for the continued prayers, I see the light and it is Jesus!
In His Glory
Ginger